Lancaster University Research Partners ForumPatient and Public Involvement (PPI)

The Research Partners Forum had its inaugural meeting in Oct 2007, as part of the International Observatory on End of Life Care at Lancaster University. Since that time, It has grown from strength to strength.

The Forum consists of 8-10 patients, public and carers along with 2 academics from the Faculty of Health. With an active membership drawn from a range of individuals with various life experiences, caring responsibilities and professional backgrounds, it has demonstrated the values of user involvement within research.

The involvement of PPI in research is being recognised nationally and internationally as adding value and contributing to better outcomes in all aspects of research. The NIHR are increasingly requiring evidence of PPI in research bids.

We are a Forum involved in health and social care research, we have lived experience of many health conditions including:
  • Cancer
  • Long Term Illnesses
  • Life Threatening Conditions
  • Arthritis
  • Heart Disease
  • Dementia
  • Mental Health Issues
  • Disability Issues

We also have experience of:
  • Research Design
  • Methodologies
  • Dissemination
  • Assessing Research Proposals
  • Acting as Participants
  • Public Contribution to Boards and Panels
  • Housing Issues
  • The Carer's Role
  • Being a Patient

We offer a patient, public and carer perspective to researchers and academics involved in health and social care research.
We meet regularly to discuss research proposal. We review and comment on questionnaires, interview schedules, surveys, research design, research questions and any other aspects of health and social care research. We are available to act as PPI members on steering boards and public advisory groups.

Influenced by the growing demand to involve patients and carers in all aspects of health and social care research, we share our expertise and lived experience.

On the whole, PPI is about creating an equal partnership which values the strengths and experiences of users. The growing recognition by researchers and professionals to consider users of services as experts has been welcomed as an important and vital milestone within health research. The Research Partner forum has been illustrative of ways to influence the development of new research and how it is undertaken.

For further information and the chance to involve the Research Partners Forum in your project, contact us: