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Friday, November 7

  1. page The Forum Members edited ... A retired Operations Manager with a rural Local Authority, Jean has extensive experience of ma…
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    A retired Operations Manager with a rural Local Authority, Jean has extensive experience of managing and developing social care services for older people, children and people with learning disabilities, in residential and domiciliary settings. The empowerment of the individual and respect for their personal autonomy has been central to her approach, and continues to be so as she engages with researchers, facilitate focus and discussion groups or act as an advocate. The research undertaken for Jean's M.A. ( Lancaster University 1992) explored the challenging interface between Health and Social Care, providing her with valuable insights into their respective organisational and professional cultures. At a personal level Jean manages chronic medical conditions with conventional and complementary therapies, including Homoeopathy and Reiki.
    Bert Green
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    and dental services,services and as a carercarer, experience of
    ...
    visiting with myhis father: towards
    ...
    end of hishisfather's life he
    Recently Bert has been involved in research projects as a member of public advisory groups, helping to develop public involvement impact assessment framework. Bert is also attending meetings of the multi-disciplinary team researching the possibility of using the record of high frequency acoustic events as biomarkers of osteoarthritis in the knee joints.
    Janet
    (view changes)
    7:13 am
  2. page The Forum Members edited ... Whilst a member of LURP Gail has participated in a number of studies, the Approach study which…
    ...
    Whilst a member of LURP Gail has participated in a number of studies, the Approach study which was in connection with care homes, and the Stroke Study. Dave, put in a link here? She has also looked at a number of research proposals with other members of LURP and commented on these. Gail has presented information on some of the activities of the group at a CECO conference, a PCT conference and at a recent event at Lancaster University.
    Jean Ellis
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    Local Authority, I haveJean has extensive experience
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    central to myher approach, and
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    so as I engageshe engages with researchers,
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    undertaken for myJean's M.A. (
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    Care, providing meher with valuable
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    personal level I manageJean manages chronic medical
    Bert Green
    Bert has training in research methods and experience as a member of NWURAG for several years, and currently as a member of the Research Partners offering feedback on health research proposals and studies. He has patient experience of GP, hospital and dental services, and as a carer experience of hospital and nursing home visiting with my father: towards the end of his life he lived through mild Parkinson's and dementia. Bert's previous involvement includes, as a member of OPRSI, usually with academic or social service partners relating to the practice and quality of health and social care.
    (view changes)
    7:10 am
  3. page Previous Projects edited ... PIIAF PiiAF [Public Involvement Impact Assessment Framework] ... particular research. …
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    PIIAF
    PiiAF [Public Involvement Impact Assessment Framework]
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    particular research.
    Peer Education
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    well received.
    The group also obtained another grant from charitable funding and ran six afternoon workshops connected with aspects of death and dying and preparation for end of life. The group is currently exploring an extension of its range of activities.
    The work of the group has been the subject of an academic paper by Katherine Froggatt at the University of Lancaster and a chapter in a book. Froggatt K with CapstIck C, Coles O, Jacks D, Lockett S, McGill I, Robinson J, Ross-Mills J, Matthieson M (2014) Addressing End of Life Issues Through Peer Education and Action Research. In Stern, T, Townsend A, Rauch F, Schuster A. Action Research Innovation and Change, International Perspectives Across Disciplines, Routledge, London pp 43-56 andBMJ. Com March 21 2014, End of Life Conversations and Care- an asset-based model for community engagement. Pub groups-bmj.com
    (view changes)
    6:51 am
  4. page Previous Projects edited ... End Stage Renal Disease PIIAF PiiAF [Public Involvement Impact Assessment Framework] This …
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    End Stage Renal Disease
    PIIAF
    PiiAF [Public Involvement Impact Assessment Framework]
    This research was funded by the MRC’s Methodology Research Programme. We joined the research team as members of the Public Advisory Group [PAG] drawn from both the Lancaster and Exeter regions. The outcome of our project: PiiAF guidance and resources can be accessed on line at piiaf.org.uk. Impacts can be many and various because of the different types of research, the people who are involved and the different ways of being involved. The primary aim of the PiiAF is to help people plan how to assess the impacts of PI; it is hoped that it will also help people think about how best to involve the public in their particular research.
    Peer Education
    Several members of LURP participated in training for Peer Education. A group arose from this which together with an academic took this work forward in the local area. A grant of £10,000 was given by the then primary care trust. The group produced a document to be used in planning for wishes and preferences in end of life. Workshops were done with members of the public and professionals talking about the content of the portfolio and a presentation was done at a PCT conference. The portfolio document has been well received.
    The group also obtained another grant from charitable funding and ran six afternoon workshops connected with aspects of death and dying and preparation for end of life. The group is currently exploring an extension of its range of activities.
    The work of the group has been the subject of an academic paper by Katherine Froggatt at the University of Lancaster and a chapter in a book. Froggatt K with CapstIck C, Coles O, Jacks D, Lockett S, McGill I, Robinson J, Ross-Mills J, Matthieson M (2014) Addressing End of Life Issues Through Peer Education and Action Research. In Stern, T, Townsend A, Rauch F, Schuster A. Action Research Innovation and Change, International Perspectives Across Disciplines, Routledge, London pp 43-56 andBMJ. Com March 21 2014, End of Life Conversations and Care- an asset-based model for community engagement. Pub groups-bmj.com
    The Stroke Study - Initiating end of life care in stroke: clinical decision-making around proposals
    This is a two-phase study over two years. Two of the LURP group are providing Patient and Public Involvement (PPI) for this and have attended meetings in Manchester with another to take place in Wales. Mary Turner, a research fellow is the academic at the University of Lancaster involved in the study.
    What does the study seek to achieve?
    The ambition in this study is to improve end of life care for people with a stroke. Whilst it affects people of all ages, including children, stroke is most common in people who are older: two thirds of strokes happen in people who are over 65 years of age. New treatments which reduce disruption to the brain’s blood supply, and better organised health services, mean that many people make good recoveries from stroke. A significant proportion of people who do suffer a stroke, nearly one in five, will however die in the first month of their stroke. The researchers want to improve the care for these people and their families.
    What is the challenge we want to address?
    Health care professionals find it challenging to support patients who might die from their stroke, and their families. It is often not possible to provide the care and support that patients and families might want. In addition, many patients and families experience problems that good quality palliative care might help with, regardless of whether they are actually dying. These include dealing with worries about, and planning for the future; pain; feeling tired; feeling down and low. As these patients are not ‘dying’, staff can find it difficult to use ideas and caring tasks from palliative care alongside their other work for these patients.
    Why is this important?
    The researchers believe all patient and families who may benefit from palliative care should be able to receive this if they need it In addition, more than half of complaints about hospitals sent to the Healthcare Commission for independent review between July 2004 and July 2006 were about care surrounding a death. We believe this is an important aspect of care to get right.
    In the first phase, researchers will be following all people admitted to any one of four hospitals to determine the different patterns of recovery, or dying, they may experience. They will also talk to different patients and families about their experiences and whether they have preferences about care and treatment. The second phase uses information learned about these patterns of recovery to develop ‘stories’ or ‘scenarios’ of what doctors, nurses and therapies and families. The stories will be used to investigate how they make decisions, what they are uncertain about, and what they do. The findings from both phases will help to develop new was of training and supporting health care staff to improve their practice.
    Public Involvement
    As the research includes some challenges it was thought to be helpful to gain alternative views about different things. One of the difficulties envisaged was that staff might find it uncomfortable to start conversations with patients and families about palliative and end of life care. Practitioners used members of the LURP team for role plays as to how best to broach these conversations and how they might deal with different members of the public displaying different types of behaviour.
    The research is ongoing and further involvement will take place by the two people involved in PPI.

    We also offer consultation on research proposals and bids. Researchers may attend our meetings to present their research proposals for comment.
    Some of our group are members of various boards and panels. e.g.. The RfPB, North West People in Research, Lancaster University CLG Steering Group.
    We have also carried out work for the Research Design Service and acted as public reviewers for NIHR funded research proposals.
    ...
    Lancaster University.
    http://senior-learners-forum.wikispaces.com/home
    (view changes)
    6:50 am
  5. page The Forum Members edited ... Dr Nancy Preston, Academic Gail Capstick QUALIFICATIONS AND EXPERTISE Qualifications and E…
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    Dr Nancy Preston, Academic
    Gail Capstick
    QUALIFICATIONS AND EXPERTISEQualifications and Expertise:
    MA Leadership and Sustainability Professional Qualifications
    MSc Housing Practice Post Graduate Certificate of Education
    MA Industrial Relations Lancaster University Cert in IT
    Llb (law degree) Member of the Chartered Institute of Housing
    BA Hons Social Ethics and Education
    Professional Qualifications:
    Post Graduate Certificate of Education
    Lancaster University Cert in IT
    Member of the Chartered Institute of Housing

    Gail has a background in teaching and housing. She worked for 14 years as a business studies teacher, ten of which were as head of department. She worked in universities for two and a half years, teaching for a year and setting up a service user and carer project which still exists. She is a housing professional and a member of the Chartered Institute of Housing. The work in housing has been for voluntary sector providers although she has also worked for local authorities and a housing association. This included community engagement and service user consultations in housing and with clients of social care. Some of this has been with groups considered hard to reach. Gail also worked with clients experiencing domestic violence and at one time was chair of Lancaster and District Women’s Aid. She has done some work in connection with older people and their support needs in housing.
    ...
    different audiences.
    Whilst a member of LURP Gail has participated in a number of studies, the Approach study which was in connection with care homes, and the Stroke Study. Dave, put in a link here? She has also looked at a number of research proposals with other members of LURP and commented on these. Gail has presented information on some of the activities of the group at a CECO conference, a PCT conference and at a recent event at Lancaster University.
    Jean Ellis
    A retired Operations Manager with a rural Local Authority, I have extensive experience of managing and developing social care services for older people, children and people with learning disabilities, in residential and domiciliary settings. The empowerment of the individual and respect for their personal autonomy has been central to my approach, and continues to be so as I engage with researchers, facilitate focus and discussion groups or act as an advocate. The research undertaken for my M.A. ( Lancaster University 1992) explored the challenging interface between Health and Social Care, providing me with valuable insights into their respective organisational and professional cultures. At a personal level I manage chronic medical conditions with conventional and complementary therapies, including Homoeopathy and Reiki.
    Bert Green
    Bert has training in research methods and experience as a member of NWURAG for several years, and currently as a member of the Research Partners offering feedback on health research proposals and studies. He has patient experience of GP, hospital and dental services, and as a carer experience of hospital and nursing home visiting with my father: towards the end of his life he lived through mild Parkinson's and dementia. Bert's previous involvement includes, as a member of OPRSI, usually with academic or social service partners relating to the practice and quality of health and social care.
    Recently Bert has been involved in research projects as a member of public advisory groups, helping to develop public involvement impact assessment framework. Bert is also attending meetings of the multi-disciplinary team researching the possibility of using the record of high frequency acoustic events as biomarkers of osteoarthritis in the knee joints.
    Janet
    Janet was in Special Education as teacher and administrator. She cared for her husband at home while he died of cancer.
    Janet was diagnosed with Lymphoma and helped to start a local support group for Lymphoma and Leukaemia patients.
    Trained as a facilitator of self-management courses for cancer patients, Janet co-produced ‘Looking to the Future’ Planning Portfolio for End of Life. She was filmed by Conversations for Life and is an experienced public speaker on issues related to chronic conditions and end of life issues.
    Irene McGill
    Irene is a retired Service Manager in Safeguarding Children and has been involved in Health Research for about 7 years. Irene has a MSc in Social Research Methodology, and this gives her a solid basis from which to work . For the last 15 years Irene has had a long term physical illness, so is well versed, as a patient, in primary and secondary care. Irene also cared for her brother for four years before he died from bowel cancer.
    Since involving herself in research Irene has gone on to become a member of the RfPB funding panel, she co chairs the NWPinR Forum Working group. Alongside this Irene is a public reviewer for the HTA and the HS&DR and has been involved as a PPI member in a number of research projects on steering groups and public advisory groups.
    Currently Irene is a member of a NICE guideline development group looking at non alcoholic liver disease .Irene is a member of Peer Education group on end of life care and is secretary to the Continuing Learning group and the Research Partners Forum.

    (view changes)
    6:42 am
  6. page The Forum Members edited ... Professor Katherine Froggatt, Academic Dr Nancy Preston, Academic Gail Capstick QUALIFICAT…
    ...
    Professor Katherine Froggatt, Academic
    Dr Nancy Preston, Academic
    Gail Capstick
    QUALIFICATIONS AND EXPERTISE
    MA Leadership and Sustainability Professional Qualifications
    MSc Housing Practice Post Graduate Certificate of Education
    MA Industrial Relations Lancaster University Cert in IT
    Llb (law degree) Member of the Chartered Institute of Housing
    BA Hons Social Ethics and Education
    Gail has a background in teaching and housing. She worked for 14 years as a business studies teacher, ten of which were as head of department. She worked in universities for two and a half years, teaching for a year and setting up a service user and carer project which still exists. She is a housing professional and a member of the Chartered Institute of Housing. The work in housing has been for voluntary sector providers although she has also worked for local authorities and a housing association. This included community engagement and service user consultations in housing and with clients of social care. Some of this has been with groups considered hard to reach. Gail also worked with clients experiencing domestic violence and at one time was chair of Lancaster and District Women’s Aid. She has done some work in connection with older people and their support needs in housing.
    For LURP particular areas of expertise are housing generally, community engagement, older people, people with learning disabilities and clients with learning disabilities. As a former teacher and trainer skills that Gail can contribute are in the preparation and contribution to presentations. She is able to write for audiences at a number of different levels, for people with learning disabilities who are readers and those with higher levels of ability. Gail can contribute to the group is assessing and analysing material as to suitability for different audiences.
    Whilst a member of LURP Gail has participated in a number of studies, the Approach study which was in connection with care homes, and the Stroke Study. Dave, put in a link here? She has also looked at a number of research proposals with other members of LURP and commented on these. Gail has presented information on some of the activities of the group at a CECO conference, a PCT conference and at a recent event at Lancaster University.
    Jean Ellis
    A retired Operations Manager with a rural Local Authority, I have extensive experience of managing and developing social care services for older people, children and people with learning disabilities, in residential and domiciliary settings. The empowerment of the individual and respect for their personal autonomy has been central to my approach, and continues to be so as I engage with researchers, facilitate focus and discussion groups or act as an advocate. The research undertaken for my M.A. ( Lancaster University 1992) explored the challenging interface between Health and Social Care, providing me with valuable insights into their respective organisational and professional cultures. At a personal level I manage chronic medical conditions with conventional and complementary therapies, including Homoeopathy and Reiki.

    (view changes)
    6:22 am
  7. page The Forum Members edited Current members of the Forum are: Gail Capstick, Chair Jean Ellis, Member Daisy, Member Bert…

    Current members of the Forum are:
    Gail Capstick, Chair
    Jean Ellis, Member
    Daisy, Member
    Bert Green, Member
    Rita Hewitt, Member
    Janet, Member

    Irene McGill, Secretary
    David Pedder, Website
    Professor Katherine Froggatt, Academic
    Dr Nancy Preston, Academic

    (view changes)
    6:16 am

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